Children's palliative care maps

Our new interactive maps show where seriously ill children and their families in England can access palliative care which meets National Institute for Health and Care Excellence (NICE) quality standards. We have created them from information provided by children’s palliative care networks and the results of freedom of information (FOI) requests of NHS clinical commissioning groups (CCGs). You can read the information returns from each regional network here.

The eight interactive Google Maps each represent a different standard of care. By switching the different map layers on and off, you can find out the following for every part of England:

Where the standards are being met (shaded in green) and where they are not (unshaded)
The number of children and children and young people aged 0-24 with life-limiting conditions per integrated care system (ICS) area [1][2]; the darker the shading, the higher the number of cases; we hope that ICSs will use this information to inform their work to commission children’s palliative care services and fill gaps in services.
The prevalence of life-limiting and life-threatening conditions per 10,000 children and young people aged 0-24 per ICS area [1][2]; the darker the shading, the higher the prevalence.
Whether local CCGs commission services to meet a standard (available on certain maps).
Where inpatient children’s palliative care services are located; these include children’s hospitals and children’s hospices. Descriptions about each service are available by clicking on the pins in the map, in addition to information about how children and families can access them.
Where Westminster parliamentary constituencies are located; we are keen that MPs use these maps to find out whether standards are being met in their constituency – and to work with the government to make sure that terminally ill children in their constituency can choose to access palliative care that meets NICE standards in hospital, in children’s hospices at at home.

24/7 home children's end of life care

This map shows the areas in England where children and young people approaching the end of life and being cared for at home have access to both children’s nursing care and advice from a consultant in paediatric palliative care 24 hours a day, seven days a week.