The role of young people, parents and families in research
Young people, parents, and families have crucial role to play in supporting research into improving...
Resources
Browse our resource library for advice and best practice on a range of children’s palliative care issues. Resources are available as pdf downloads, and some can be ordered as hard-copies (free to families and our members). Download a catalogue of all our resources.
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The Spectrum of Children’s Palliative Care Needs – Introduction
An introductory leaflet and user guidelines for this prognostic based framework to identify children and...
The Spectrum of Children’s Palliative Care Needs – Spectrum framework
A prognosis based framework for children and young people who have palliative care needs
Use of liquidised ‘table food’ diets via gastrostomy Q&A
This resource, produced by a small working party with interdisciplinary representation from British Dietetic Association,...
Vulnerability factors for acceptance of children with cerebral palsy
Around 18% of children with cerebral palsy die in childhood. Acceptance criteria for children’s hospices usually...
West Midlands Toolkit
The Toolkit exists to support families in their unique journeys, by equipping staff with resources...
Young Adult Data Report by Dr Lorna Fraser
This latest report from Dr Lorna Fraser et al provides data on the prevalence of...
Your child is receiving the End of Life on-call service – Diana Team
To be completed by the Diana Team from Referral through to Discharge. To ensure the...