MPs from across the parties have today pressed the government to improve the care and support on offer to children and young people with life-shortening conditions. The debate was secured by Conservative MP and former children’s hospice fundraising manager Stuart...

My son William is now ten. He is a charming, happy little boy who lights up the room with his laugh. He was also born with Edwards Syndrome, which means he has required 24/7 medical care for his whole life....

When our son Ben was born and diagnosed with Spinal Muscular Atrophy, a neurological condition that causes weakness to the muscles, our lives were turned upside down. Ben’s condition means he has complicated health needs which require personal one to...

We are now in the 7th year of Dying Matters, with the coalition established in 2009 to promote public awareness of dying, death and bereavement. As each year passes I hope that there will be a sudden transformation and we will all...

Today I am going to set out four points and with them four challenges – by addressing each I think we can help to improve the quality of care at the end of life. But before we turn to them...

Our resource is designed to support clinical commissioning groups (CCGs) and local authorities in England to effectively commission palliative care for children and young people aged 0–25. Produced as part of our Department for Education-funded special educational needs and disability (SEND)...