Today, I am hosting a parliamentary reception on behalf of Together for Short Lives – the UK charity for children with life-limiting and life-threatening conditions. The event is part of the charity’s campaign to secure an around the clock service...

My name is Lucy Watts and I am 22 years old. I have a life-limiting/life-threatening form of a condition called Ehlers-Danlos Syndrome. I spend a lot of time in hospital, but I want to be supported in the community, in...

We are fortunate to live in a country where end of life care is the best in the world. Like many across the children’s palliative care sector, I’ve spent time reflecting on the Economist Intelligence Unit’s (EIU) Quality of Death Index and...

Last week (Friday 23rd October), peers debated Baroness Finlay’s Access to Palliative Care Bill in the House of Lords. Together for Short Lives briefed peers on the importance of including children, young people and their families in the debate and called on them...

Together for Short Lives has published a brand new interactive resource to help voluntary sector providers of children’s palliative care - including children’s hospices - to link in with NHS, education and care commissioners and providers in their local community. We have...

The Children and Families Bill, which will reform the way in which children and young people aged 0 – 25 with special educational needs and disabilities (SEND) are assessed and supported, received Royal Assent on Thursday (14 March). From September,...