Perhaps an odd title for a blog as we enter a period of unprecedented political and social change both here and abroad. But events over the past 12 months, and indeed those ahead, have reinforced my belief that what unites us is...

A number of peers have called for the government to transform the way in which children’s palliative care is planned, funded and provided in England. On Tuesday (14 March), several peers called on the government to make sure that NHS...

My name is Leah Booth and I am a Young Avenger for Together for Short Lives. I have Spinal Muscular Atrophy Type 2 which mean I need 24/7 care and support. I wanted to write to you regarding the transitions,...

In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...

Today, I am proud to be hosting a Parliamentary reception on behalf of Together for Short Lives – the UK charity which speaks up #forthe49000 children and young people in the UK with life-limiting and life-threatening conditions. The event is...

Together for Short Lives has today called on the Government to accept the recommendations from a cross-party group of MPs to strengthen proposed legislation on Special Educational Needs and Disability (SEND). The Education Select Committee’s report follows its scrutiny of...